Electronic ISSN 2287-0237

VOLUME

EXPERIENCE OF PARENTS CARING FOR THEIR CHILDREN WITH THALASSEMIA: CHALLENGES AND ISSUES FOR INTEGRATIVE REVIEW

FEBRUARY 2019 - VOL.15 | REVIEWS ARTICLE
  1. Yunak R, Chontawan R, Sripichayakan K, et al. Living withthe differences: Thai adolescents’experiences of living withtransfusion-dependent Thalassemia. Thai J Nurs Res2009;13:318-31.
  2. Baghianimoghadam MH, Sharifirad G, Rahaei Z, et al. Healthrelated quality of life in children with thalassemia assessedon the basis of SF-20 questionnaire in Yard, Iran: acase-control study. Cent Eur J Public Health 2011;19:165-9.
  3. Trachtenberg FL, Gerstenberger E, Xu Y, et al. Relationshipamong chelator adherence, change in chelators, and qualityof life in Thalassemia. Qual Life Res 2014;23:2277-88.
  4. Koutelekos J, Haliasos N. Depression and Thalassemia inchildren, adolescents and adults. Health Sci J 2013;7:239-46.
  5. Behdani F, Badiee Z, Hebrani P, et al. Psychological aspectsin children and adolescents with major Thalassemia: A casecontrolstudy. Iran J Pediatr 2015;25:314-22.
  6. Jantan A, Naznin M, Nora M, et al. Thalassaemia: A study onthe perception of patients and family members. Med JMalaysia 2011;66:326- 34.
  7. Shosha GMA. Needs and concerns of Jordanian mothers withthalassemic children: A qualitative study. J Am Sci 2014;10:11-6.
  8. Pouraboli B, Abedi HA, Abbaszadeh A, et al. The burden ofcare: Experiences of parents of children with thalassemia. JNurs Care 2017; 6: 1-8.
  9. Aziz AR, Mohammed SH, Aburaghif LF. Burden of caregivercare for children with thalassemia at Babylon Child andMaternity Teaching Hospital / Babylon Governorate / Iraq.IOSR JNHS 2015;4(6):82-7.
  10. Shosha GA, Kalaldeh MA. Challenges of having a child withthalassemia major: a phenomenological study. J Res Nurs2018;23:9-20.
  11. Lee C, Ayers SL, Kronenfeld JJ. The association betweenperceived provider discrimination, health care utilization andhealth status in racial and ethnic minorities. Ethn Dis2009;19:330-7.
  12. Wong LP, George E, Tan J. Public perceptions and attitudestoward thalassemia: Influencing factors in a multiracialpopulation. BMC Public Health 2011;11:1-9.
  13. Liem RI, Gilgour B, Pelligra SA, et al. The impact ofThalassemia on Southeast Asian and Asian Indian families inThe United States: A qualitative study. Ethn Dis 2011;21:361-9.
  14. Shamseer L, Moher D, Clarke M, et al. Preferred reportingitems for systematic review and meta-analysis protocols(PRISMA-P) 2015: elaboration and explanation. BMJ2015;349:g7647.
  15. Nowell LS, Norris JM, White DE, et al. Thematic analysis:Striving to meet the trustworthiness criteria. Int J Qual Meth2017;16:1-13.
  16. Bettany-Saltikov J. How to do a systematic literature reviewin nursing: a step-by-step guide. Maidenhead: McGraw-Hill/Open University Press, 2012.
  17. Wahab JA, Naznin M, Nora MZ, et al. Thalassaemia: a studyon the perception of patients and family members. Med JMalaysia 2011;6:326-34.
  18. Shahraki-vahed A, Firouzkouhi M, Abdollahimohammad A,et al. Lived experiences of Iranian parents of beta-thalassemiachildren. JMDH 2017;10:243-51.
  19. Arbabisarjou A, Karimzaei T, Jamalzaei A. The perception ofbiological experience in patients with major thalassemia: aqualitative research. GJHS 2015;7:79-87.
  20. Mazzone L, Battaglia L, Andreozzi F, et al. Emotional impactin β-thalassaemia major children following cognitivebehavioural family therapy and quality of life of care givingmothers. Clin Pract Epidemiol Ment Health 2009;5:5.
  21. Widayanti CG. The perceived role of God in health and illness:The experience of Javanese mothers caring for a child withthalassemia. J Psikologi Undip 2011;9(1): 50-56.
  22. Mashayekhi F, Rafati S, Rafati F, et al. A study of caregiverburden in mothers with thalassemia children in Jiroft. ModernCare J 2014;11:229-35.
  23. Ghazanfari Z, Arab M, Forouzi M, et al. Knowledge level andeducational needs of thalassemic children’s parents in Kerman.J Crit Care Nurs 2010;3:e7143.
  24. Ishfaq K, Ali AA, Hashmi M. Mothers’ awareness andexperiences of having a thalassemic child: A qualitativeapproach. PJSS 2015:35(1):109-21.
  25. Luong J, Yoder MK, Canham D. Southeast Asian parentsraising a child with autism: a qualitative investigation ofcoping styles. J Sch Nurs 2009;25:222-9.
  26. Saldanha SJ. Stress and coping among parents of childrenhaving thalassemia. IJSR 2015;4:849-53.
SEARCH VOLUME & NUMBER
GO
RECENT VOLUME & NUMBER